PRESS RELEASE: National Peak Body Welcomes Historic Investment in Endometriosis Research and Launch of Dedicated Institute
FOR RELEASE AT:
1050am (AEST)
Tuesday, 20 May 2025
National Peak Body Welcomes Historic Investment in Endometriosis Research and Launch of Dedicated Institute
The Endometriosis Coalition, Australia’s peak body representing the endometriosis sector, today welcomes the official announcement of a national research initiative and the launch of the Australian Endometriosis Research Institute — a game-changing moment in the quest to better understand, diagnose, and treat endometriosis.
Announced this morning at UNSW Sydney in the presence of Her Excellency the Honourable Ms Sam Mostyn AC, Governor-General of the Commonwealth of Australia, this initiative will centre on the fundamental biology of endometriosis lesions — asking the critical questions:
What are they? When do they form? Why do they behave the way they do in the body?
This has been the focus of long-term advocacy by the Endometriosis Coalition and its more than 100 member organisations, including consumer bodies, researchers, GPs, allied health professionals, medical colleges, and health sector partners. We are proud to note that several of the researchers leading this new initiative are founding members of the Endometriosis Coalition and have been instrumental in shaping this peak body from the outset.
“This is a pivotal moment for our sector,” said Jessica Taylor, Chair of the Endometriosis Coalition. “We have always said: if we want a cure, we must first understand the disease. Today’s announcement answers that call and backs it with a dedicated research institute.”
The Coalition is particularly proud to continue its work alongside the newly established Australian Endometriosis Research Institute, ensuring that research is informed by both science and lived experience. It reflects the power of national collaboration — across disciplines, jurisdictions, and communities — to drive forward real change.
Endometriosis affects 1 in 7 women and people assigned female at birth, and costs the Australian economy an estimated $9.7 billion annually. Yet until now, investment in understanding the condition has been fragmented and underfunded.
“This is not just another research project,” Taylor added. “It is the foundation of the future: earlier diagnosis, targeted treatment, and – one day – prevention and cure.”
The Endometriosis Coalition remains committed to leading national policy conversations, amplifying clinical and consumer voices, and ensuring the next phase of research delivers tangible outcomes for people living with endometriosis and pelvic pain.
For media inquiries or interviews, contact:
[email protected]
Jessica Taylor, Chair Endometriosis Coalition
0434 106 341
The Endometriosis Coalition is Australia’s peak body for endometriosis and pelvic pain.
We are a national alliance representing over 100 organisations, professionals, and groups across the health, research, education, workplace, and consumer sectors. Our members include clinicians, researchers, peak bodies, health services, advocates, and people with lived experience.
Together, we drive collaborative action to improve diagnosis, care, education, research, and outcomes for all Australians affected by endometriosis and pelvic pain.
We unite and represent the full ecosystem of endometriosis and pelvic pain stakeholders—ensuring a coordinated, evidence-informed, and person-centred approach to care, support, education, and innovation.
